Do you remember doing this as a kid? I think I must have lived in this position as I layed on the floor watching tv. To me it was the most natural position to be in. I remember my sisters teasing me about how double-jointed or flexible I was and I was happy to entertain them.
Last week I had an appointment with a Rheumatoid Specialist and they did a head-to-toe exam on me (the first I had ever had which is pretty ridiculous considering I have had pain in my joints since I was 9 years old). Anyway, they tested ALL of my joints and what they discovered was that I did not have Rheumatoid Arthritis, or Lupus (which is good), but what I do have is a hypermobility of all my joints.
Most people grow out of this (double-jointedness). But some do not. I still have it and this is the reason for all the pain in my joints. I am still in shock that no-one has told me this before! I don't know that it effects everyone in the same way but for me there is too much movement in my joints and this causes immflamation and pain ~ that is why I cannot exercise like everyone else because my joints are already overextended as it is.
They also told me I have a bad case of Fibromyalgia (which I already knew) but it was funny because the specialist knew exactly what points on my body gave me pain (and unfortunately she kept poking at them! (OUCH! QUIT IT! OUCH! QUIT IT!...LOL)
I was so impressed with this clinic because they really understand pain and were so helpful in explaining what was actually going on in my body. Chronic pain is not understood by many in the medical field but the specialists are so understanding and they treat you like a person, unlike others who treat you like it's all in your head.
For some reason I have extremely sensitive reflexes and at one point during the session there were two Rheumatoid specialists, one physiotherapist and an RN all using me for entertainment because my reflexes were so brisk and sensitive! Because they were all so nice, and that day was a good pain day, I was once again happy to entertain.:)
I am so glad to finally know the reason for my joint pain, and now the Specialist clinic is going to set me up with exercises that are for people with hypermobility so that I don't keep hurting myself. It feels good to get some answers and to be on the right road to not hurting myself anymore.
Well, I hope and pray you all have a wonderful day. Here it is raining... but I'm okay with that as this gives me time to work on my book.
Hugs and many blessings to all of you.
6 comments:
Ooh, ouch! That doesn't sound like much fun, but thank goodness you've found some practitioners that understand.
It's a long long time since I've been able to do what that sweet little girl is doing!
xx
Kelly, I'm so glad that you have a clearer understanding of what is causing your pain. I was especially glad to hear that it isn't RA. Hopefully, as you work on the exercises they're giving you it will help to stabilize the joints. I'm so happy that you've gotten some answers. Hugs, Terri
I'm glad you are getting to the reason for the source of all your pain Kelly. It must be a great relief to finally be moving forward and being able to live with less pain. Sounds like you have found the right place to be to get treatment.
Lee:)
Hi, Kelly ! That is such a great news that they were SO NICE !!! I know how some can be just so rude that I wonder if they are really in the right profession. It sounds really good and hope they can help you lessen the pain ! Thanks for all the super wonderful comment on my blog, Kelly :D BIG XOXOXO !!! mmmwha~
Ooh that doesn't sound like much fun, but I am glad you are getting some answers. Hope your pain gets a little better x
Hi there,
I have the same thing you do with the joints.
I was in a research program at a hospital in Massachusetts, when the specialist running the program looked at me and told me I had it with just looking at me. He had me do all these different things with my body, bending etc. and then explained it to me. I have had fibro since I was 15 and am now 51 so I so relate. I did not make that research program, but I did go to a fibro and chronic fatigue center in PA and Conn for a year and a half. I did get better. That was three years ago. I am dealing with fatigue again, but so much better, no foggy head like I had, and the pain is not any where what it was.
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